NBIA
Neurodegeneration with
Brain
Iron
Accumulation
​
RareConnect Survey
Please take a few minutes to add yourself to the email list for an NBIA survey.
Dr. Sunita Venkateswaran MD, FRCPC,
director of the Canadian NBIA
Clinical Center and her Collegaue,
Dr. Brittany Paul MD on behalf of
the Children’s Hospital of Eastern
Ontario (CHEO) and the Children's
Hospital London Health Sciences
Centre via RareConnect have put
together a survey to assess NBIA
family needs in Canada.
​
The knowledge gained will help to create educational resources for families and healthcare providers with the goal of also providing families with an opportunity to attend a future NBIA family conference based on the needs of Canadian families.
​
To participate, please email
Madhura Thipse, research coordinator
for Dr. Venkateswaran
​
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