top of page

 

NBIA

 

Neurodegeneration with

 

Brain

 

Iron

 

Accumulation

 

 

 

 

​

 

 

 

 

RareConnect Survey

survey.jfif

Please take a few minutes to add yourself to the email list for an NBIA survey.


Dr. Sunita Venkateswaran MD, FRCPC,

director of the Canadian NBIA

Clinical Center and her Collegaue,

Dr. Brittany Paul MD on behalf of

the Children’s Hospital of Eastern

Ontario (CHEO) and the Children's

Hospital London Health Sciences

Centre via RareConnect have put

together a survey to assess NBIA

family needs in Canada.

​

The knowledge gained will help to create educational resources for families and healthcare providers with the goal of also providing families with an opportunity to attend a future NBIA family conference based on the needs of Canadian families.

​

To participate, please email

Madhura Thipse, research coordinator

for Dr. Venkateswaran

(mthipse@cheo.on.ca)

​

nbia fundraiser
alliance-members-2015-germany-004
559607_10154839820490082_362586908910912274_n
C
bottom of page