The Alliance members’ agreements comprise the following areas of cooperation:

• While each country has their own legal entity, we share common goals in helping NBIA families coping with these rare disorders, promoting improved health care with access for all those affected and supporting NBIA research to find more effective treatments and ultimately cures for these disorders.

• We are working together on a strategic plan for the future that we all endorse and will implement together.

• We display the Alliance logo on our websites and in literature to show we are members of a worldwide collaboration.

• We encourage the growth of NBIA organizations in other countries and strive to help newly developing groups by sharing our knowledge, and being a resource to help them flourish and join our Alliance.          

• We are represented by the lay leaders of each country’s NBIA organizations and a Scientific Advisory Board of leading NBIA researchers (with representatives from the TIRCON consortium) and clinicians that share our vision of collaboration and cooperation.

• We are willing to network and exchange experiences with other organizations that share our goals in the field of rare diseases.

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